Welcome!

The Yaya Foundation is proud to announce its upcoming 4H Leukodystrophy Virtual Care & Disease Management Day on Friday, April 22, 2022.

Based on input from many individuals and families affected by 4H Leukodystrophy, conference topics will focus on Supportive Care & Disease Management. The Foundation collaborated closely with leading 4H Clinician Scientist, Dr Genevieve Bernard, to identify speakers and finalize the agenda.

We look forward to bringing individuals and families affected by 4H together with leading specialty clinicians who have cared for 4H patients. Our goal is to safely include as many families as possible. To achieve that, the Virtual Care & Disease Management Day will be delivered virtually. The conference agenda will also allow opportunities for the 4H community to connect.

All sessions will be available virtually. We are finalizing Spanish translation availability.

Please register today! We think this will be an amazing day together!

  • REGISTRATION
    Register for the virtual conference.

  • SESSIONS
    View the conference agenda and join a session.

  • LOUNGE
    Connect with other conference attendees.

  • RESOURCE CENTER
    The latest information, events, and resources.

  • SPONSORS
    View our conference sponsors.

  • HELP DESK
    Get help with technical issues and answers to your questions.